Advocacy groups urge Health Ministry to address Delays in ₹974 crore rare disease fund

Patient advocacy groups have written to Union Health Minister J.P. Nadda, raising concerns about the delay in rolling out the ₹974 crore fund under the National Policy for Rare Diseases (NPRD) 2021. The delay is causing severe financial distress for families and eroding trust in the government's commitment to supporting rare disease patients.

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